Standing Committee of Paediatric Rheumatology
Initiatives and activities
- Clinical care of children and young people with rheumatic disease: The standing committee will continue to have an overview of the standards of clinical care provided in paediatric rheumatology centres in Europe and beyond. It is recognised that the provision of such care will continue to involve networks of health care professionals and will cross boundaries between paediatrics and adult care for the foreseeable future. An approved system for accreditation and re-validation of health professionals with expertise in paediatric rheumatology will continue to be a priority.
- Education and training in paediatric rheumatology: The planning and endorsement of educational courses is an important activity of the standing committee. The standing committee has successfully applied for bursaries from EULAR for several training / educational courses, the most recent of which was held in London in 2008. This course is usually held in conjunction with the annual PReS congress. There is an agreed curriculum which aims to cover the main topics in paediatric rheumatology over a 3 year period.
- Research and knowledge transfer: It is increasingly recognised that many of the origins of adult diseases are based in the childhood years. A strategic and well structured combined approach to researching such origins is vital to the health of future generations. Supporting collaborative, multi-centre, long-term longitudinal research networks is becoming one of the most important tasks of the Standing Committee of Paediatric Rheumatology. Examples include the PRINTO network and CARRA. The PRINTO website documents ongoing clinical trials in PReS.
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RELATED INFORMATION
Application for a new initiative in paediatric rheumatology
The chair of the standing committee will liaise with the relevant standing committees and will guide the applicant in the application process.
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