The EULAR COVID-19 Registry closed on the last day of the EULAR 2022 Congress. Since March 2020, the EULAR/Global Rheumatology Alliance partnership has facilitated the collection of 12,861 COVID-19 cases in the EULAR Registry, and over 22,000 in total across global provider registries. The information collected has informed clinical practice and the development of new recommendations. 

EULAR would like to sincerely thank all the rheumatologists, physicians, epidemiologists, healthcare professionals, national societies, and patients who contributed to and supported this important initiative. 

 

About the EULAR - COVID-19 Registry

The EULAR - COVID-19 Registry is a European paediatric and adult registry (in collaboration with the Pediatric Rheumatology European Society (PReS)) to monitor and report on outcomes of “Coronavirus Disease 2019” (COVID-19) occurring in patients with rheumatic and musculoskeletal diseases (RMDs). The Registry closed in June 2022 after almost 2 years of collecting cases worldwide. The registry helped to understand outcomes of patients who acquired “severe acute respiratory syndrome coronavirus 2” (SARS-CoV‐2) infection and who received steroids, synthetic or biologic disease-modifying anti-rheumatic drugs (DMARDs) and non-steroidal anti-inflammatory drugs (NSAIDs). The data collected will continue to guide rheumatologists and other clinicians such as specialist nurses in advising and caring for their patients.

We are grateful to our international colleagues who have established the COVID-19 Global Rheumatology Alliance1 and helped us establish this registry. Anonymised data will be shared with this international registry, based in the United States.

 

Partner national registers 

French COVID-19 Register[*]

German COVID-19 Register[*]

Greek COVID-19 Register[*]

Italian COVID-19 Register[*]

Portuguese COVID-19 Register[*]

Swedish COVID-19 Register[*]

 

FAQs (Frequently asked questions)

See frequently asked questions about the EULAR COVID-19 Registry. 

See more

 

The EULAR-COVID-19 Registry steering group

Pedro Machado, United Kingdom
Rheumatologist & Epidemiologist, Chair of the EULAR Standing Committee of Epidemiology and Health Services Research (SCEHSR); 
University College London (UCL), London, UK
Elsa Mateus, Portugal
Patient Representative & Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE); Portuguese League Against Rheumatic Diseases (LPCDR), Lisbon, Portugal
Laure Gossec, France
Rheumatologist & Epidemiologist, Past-Chair of the EULAR Standing Committee of Epidemiology and Health Services Research (SCEHSR);Sorbonne Universite and Pitie Salpetriere Hospital, Paris, France
Kimme Hyrich, United Kingdom
Rheumatologist & Epidemiologist, UK Centre for Epidemiology Versus Arthritis, Manchester, UK
Anja Strangfeld, Germany
Physician & Epidemiologist, Epidemiology Unit, German Rheumatism Research Centre (DRFZ), Berlin, Germany

Loreto Carmona, Spain
Rheumatologist & Epidemiologist, Instituto de Salud Musculoesquelética, Madrid, Spain

 

EULAR-COVID-19 Country Leads

France: Christophe Richez, Éric Hachulla

Germany: Rebecca Hasseli

Greece: Charalampos Papagoras

Italy: Carlo Scirè

Portugal: Maria José Santos

Sweden: Lotta Ljung

 

Disclaimer

The EULAR COVID-19 Registry is based on rheumatologists and other clinicians voluntarily reporting cases, meaning that patients included do not necessarily represent the majority of patients with RMDs and COVID-19, but those who their doctors reported data to the Registry. Additionally, this registry does not account for non-COVID-19 patients. Therefore, results cannot be directly extrapolated to the entire population of patients with RMDs and COVID-19, and should be interpreted cautiously. For research purposes and proper considerations, this data requires adequate analysis, further adjustments and stratifications.

 

References
1 The COVID-19 Global Rheumatology Alliance. Website: rheum-covid.org
[*]External link

Related Information

Latest reports

28 April 2022

EULAR COVID-19 Registry infographic

EULAR COVID-19 Registry Report


EULAR COVAX Registry

EULAR has set up a very simple survey to be filled in online after consultation with an RMD patient any time after her/his first or second injection of COVID-19 vaccination.

COVAX REGISTRY


Papers using the combined EULAR & Global Registry Data

Outcomes of SARS-CoV-2 infection among children and young people with pre-existing rheumatic and musculoskeletal diseases

Read paper[*]

View infographic

 

EULAR COVID-19 registry: lessons learnt and future considerations

Read paper[*]

 

Factors associated with COVID-19-related death in people with rheumatic diseases: results from the COVID-19 Global Rheumatology Alliance physician-reported registry

Read paper[*]

Read lay summary[*]

View infographic (PDF)

 

Characteristics associated with hospitalization for COVID-19 in people with rheumatic disease: data from the COVID-19 Global Rheumatology Alliance physician-reported registry.

Read paper[*]

Read lay summary[*]


Contact

If you have any questions about these registries please send an e-mail to eularcovid19@eular.org .

Please note that this email address is for technological clarifications about the Registry and NOT for patient data and queries.


[*]External link