EULAR Research Consortia Partnerships

EULAR collaborates with consortia across Europe to help incorporate the patient perspective in all stages of international research on rheumatic and musculoskeletal diseases (RMDs). This work is led by the EULAR PARE (People with Arthritis and Rheumatism) team.

Interested consortia are invited to submit a collaboration request online.

 

The EULAR team provides the following support for consortia research projects:

  • Providing the patient perspective to inform and co-develop all aspects of a research project (e.g., work packages, tasks, deliverables) through the collaboration with patient research partners (PRPs) from the EULAR network.
  • Support with convening patients for Patient Advisory Groups, Steering and/or Executive Committees, Ethics Boards.
  • Advising, monitoring, and evaluating the project’s impact on patients’ lives and health outcomes.
  • Providing tailored training for patients and/or researchers to help achieve the project’s objectives and results.
  • Advising on and assistance with disseminating project findings and materials to diverse patient communities and the general public through the EULAR communication channels.

 

Eligibility

  • Consortia must be based in EULAR-affiliated countries.
  • Consortia must apply for funding external to EULAR (e.g., Horizon Europe, Innovative Medicines Initiative).
  • EULAR must be recognised as a full partner in the consortia (including the assignment of a budget to carry out its activities during the project).

 

Terms and Conditions

Support will depend on EULAR PARE’s capacity to deal with requests, as well as on the projects’ relevance to PARE’s mission and community.

 

Research Ethics

EULAR expects a high standard in the conduct of research it supports. For researchers this includes scientific integrity and adherence to the principles of good research practice. Patients subjected to investigation shall be included with due adherence to the declaration of Helsinki.

 

Previous and ongoing consortia partnerships

Title

Project description

Time frame

HarmonicSS

HarmonicSS is a private-public funded research project entitled HARMONIzation and integrative analysis of regional, national and international cohorts on primary Sjögren's Syndrome (pSS) towards improved stratification, treatment and health policymaking.

2017-2020

 

Related Information

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Questions?

Contact the Research team at research@eular.org