EULAR Impact of RMDs Survey

The EULAR Impact of RMDs Survey gathers first-hand insights from people living with rheumatic and musculoskeletal diseases (RMDs) across EULAR member countries. Through periodic questionnaires, patients share their healthcare experiences and how RMDs affect their daily, social, and work lives.

In current research and care for rheumatic and musculoskeletal diseases (RMDs), fostering patient engagement and collaboration is vital. There is a growing recognition of the important insights that people living with RMDs offer through their lived experiences and perspectives on their conditions. Patient's input is a crucial resource for advocacy, research, and healthcare improvement. It helps professionals, researchers, and patient organizations better understand the real burden of these conditions and work toward improving care and quality of life.

If you are living with an RMD, EULAR encourages you to take the survey and make your experience count. Your perspective can drive meaningful change.

If you are a healthcare professional or work in the field, please encourage your patients and colleagues to participate. Every response strengthens the impact of this initiative.

Together, we can make a difference. Join us and share the survey today!

Healthcare Professionals

Check out the survey, share it with patients and ask them to participate!

View Survey Questions

Patients

Complete the Survey now

Survey Languages and Topics

After its initial release in English, the EULAR Impact of RMDs Survey will subsequently be available in multiple languages spoken within EULAR member countries, ensuring accessibility to a wider population. The survey covers a range of topics, including diagnosis and disease history, access to care and its quality (including medical and non-pharmacological treatments), disease burden, demographic status, and socioeconomic situation. All information collected will be de-identified to safeguard patient privacy and comply with relevant data privacy regulations.

By systematically collecting and analysing data from a large number of people living with RMDs on a recurring basis, this project will serve as a powerful tool for monitoring disease trends and treatment patterns over time. This longitudinal approach will help guide clinical practice, shape policy decisions, and drive advocacy efforts, particularly in addressing gaps and inequalities in healthcare.

Procedure of Survey

The survey is to be completed online via our website. Feel free to take breaks as needed. We anticipate that completing the survey will take approximately 45 minutes.

Communications Toolkit

Help us spread awareness about our survey. Join us and explore our Impact Survey toolkit, which features social media content and a flyer, to support your activities around the Impact Survey. This toolkit is primarily for use by EULAR member organisations. Other non-profit organisations supporting people with RMDs, professionals in the field as well as individuals with RMDs are welcome to use the communications materials.

Download Communications Toolkit

Contacts

If you have any questions or concerns, please contact RMDimpactsurvey@eular.org

Steering Group

Prof. Dr. med. Anja Strangfeld

Germany

Epidemiologist; German Rheumatism Research Centre and Charité University Medicine, Berlin, German

Dr. Anna Molto

France

Rheumatologist & Epidemiologist, Chair of the EULAR Public Health and Epidemiology Research Sub-Committee; Hôpital Cochin (Hôpitaux Universitaires Paris Centre), Paris, France