In current research and care for rheumatic and musculoskeletal diseases (RMDs), fostering patient engagement and collaboration is vital. There is a growing recognition of the important insights that people living with RMDs offer through their lived experiences and perspectives on their conditions.

The EULAR Impact of RMDs Survey aims to play a key role in this endeavor. Through periodic surveys, patients will contribute first-hand data about their healthcare situation and how their diseases impact their social and occupational lives. This data will serve as an important resource for researchers, healthcare professionals, and patients alike, providing valuable information into the burden of disease and helping improve overall care for those living with RMDs.

After its initial release in English, the EULAR Impact of RMDs Survey will subsequently be available in multiple languages spoken within EULAR member countries, ensuring accessibility to a wider population. The survey covers a range of topics, including diagnosis and disease history, access to care and its quality (including medical and non-pharmacological treatments), disease burden, demographic status, and socioeconomic situation. All information collected will be de-identified to safeguard patient privacy and comply with relevant data privacy regulations.

By systematically collecting and analysing data from a large number of people living with RMDs on a recurring basis, this project will serve as a powerful tool for monitoring disease trends and treatment patterns over time. This longitudinal approach will help guide clinical practice, shape policy decisions, and drive advocacy efforts, particularly in addressing gaps and inequalities in healthcare.

The survey is to be completed online via our website. Feel free to take breaks as needed. We anticipate that completing the survey will take approximately 45 minutes.

If you have any questions or concerns, please contact  RMDimpactsurvey@eular.org