The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.  

The EULAR Impact of RMDs Survey will be available in all relevant languages of the EULAR member states and contains questions on diagnosis and disease history, access to care and its quality (medical and non-pharmacological treatments), disease burden, demographical status, and socioeconomic situation. All information will be de-identified to protect patient privacy and comply with relevant data privacy regulations.  

By collecting and analysing data from a large number of patients with RMDs on a recurring basis, this project will serve as a tool for monitoring disease trends and treatment patterns over time, which can help guide clinical practice, policy decisions and advocacy activities. 

The EULAR Impact of RMDs Survey is in its last phases of development and will be published on this page soon.  

For more information, please contact: RMDimpactsurvey@eular.org 

See infographic