EULAR Impact of RMDs Survey
The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.
The EULAR Impact of RMDs Survey will be available in all relevant languages of the EULAR member states and contains questions on diagnosis and disease history, access to care and its quality (medical and non-pharmacological treatments), disease burden, demographical status, and socioeconomic situation. All information will be de-identified to protect patient privacy and comply with relevant data privacy regulations.
By collecting and analysing data from a large number of patients with RMDs on a recurring basis, this project will serve as a tool for monitoring disease trends and treatment patterns over time, which can help guide clinical practice, policy decisions and advocacy activities.
The EULAR Impact of RMDs Survey is in its last phases of development and will be published on this page soon.
For more information, please contact: RMDimpactsurvey@eular.org
The EULAR Impact of RMDs Survey – Steering Group
Prof. Dr. med. Anja Strangfeld, Germany
Epidemiologist; German Rheumatism Research Centre and Charité University Medicine, Berlin, Germany
Dr. Anna Molto, France
Rheumatologist & Epidemiologist, Chair of the EULAR Public Health and Epidemiology Research Sub-Committee; Hôpital Cochin (Hôpitaux Universitaires Paris Centre), Paris, France
Prof. Angela Zink, Germany
Epidemiologist; German Rheumatism Research Centre, Berlin, Germany
Prof. Pedro Machado, United Kingdom
Rheumatologist & Epidemiologist; University College London (UCL), London, UK
Dr.Elsa Mateus, Portugal
Patient Representative & Vice-President PARE; Portuguese League Against Rheumatic Diseases (LPCDR), Lisbon, Portugal
The EULAR Impact of RMDs Survey – Operational Group
Dr. Johanna Callhoff, Germany
Statistician, German Rheumatism Research Centre and Charité University Medicine, Berlin, Germany
EULAR Research team, Switzerland
Carina Haupt, Senior Research Manager
Dr. Konstantinos Billis, Research Data Architect
Dr. Coralie Signorell, Clinical Trials Manager
Anastasiia Miendrova, Project Coordinator
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Contact the Research team at RMDimpactsurvey@eular.org