EULAR Research Consortia Partnerships
EULAR collaborates with consortia across Europe to help incorporate the patient perspective in all stages of international research on rheumatic and musculoskeletal diseases (RMDs). This work is led by the EULAR PARE (People with Arthritis and Rheumatism) team.
Interested consortia are invited to submit a collaboration request online.
Due to lack of capacity, EULAR is currently unable to accept new requests for collaboration with research consortia. We will resume this activity as of July 2023.
The EULAR team provides the following support for consortia research projects:
- Providing the patient perspective to inform and co-develop all aspects of a research project (e.g., work packages, tasks, deliverables) through the collaboration with patient research partners (PRPs) from the EULAR network.
- Support with convening patients for Patient Advisory Groups, Steering and/or Executive Committees, Ethics Boards.
- Advising, monitoring, and evaluating the project’s impact on patients’ lives and health outcomes.
- Providing tailored training for patients and/or researchers to help achieve the project’s objectives and results.
- Advising on and assistance with disseminating project findings and materials to diverse patient communities and the general public through the EULAR communication channels.
- Consortia must be based in EULAR-affiliated countries.
- Consortia must apply for funding external to EULAR (e.g., Horizon Europe, Innovative Medicines Initiative).
- EULAR must be recognised as a full partner in the consortia (including the assignment of a budget to carry out its activities during the project).
Terms and Conditions
Support will depend on EULAR PARE’s capacity to deal with requests, as well as on the projects’ relevance to PARE’s mission and community.
EULAR expects a high standard in the conduct of research it supports. For researchers this includes scientific integrity and adherence to the principles of good research practice. Patients subjected to investigation shall be included with due adherence to the declaration of Helsinki.
Previous and ongoing consortia partnerships
HarmonicSS was a research project entitled HARMONIzation and integrative analysis
of regional, national and international cohorts on primary Sjögren's Syndrome (pSS) towards improved stratification, treatment and health policymaking. This project received funding from the European Union’s Horizon 2020 Research and Innovation Programme and
from the Swiss State Secretariat for Education, Research and Innovation.
HIPPOCRATES - Promoting Early Identification and Improving Outcomes in Psoriatic
Arthritis is a research project funded by the Innovative Medicines Initiative (IMI 2), a Joint Undertaking of the European Union and the European Federation of Pharmaceutical Industries and Associations (EFPIA).
The SQUEEZE project addresses how biomarkers can be used to optimize disease-modifying antirheumatic drugs (DMARDs) for rheumatoid arthritis (RA). The SQUEEZE project is funded by the European Union's Horizon Europe Programme and by the Swiss State Secretariat for Education, Research and Innovation.
The STRATA-FIT consortium aims to develop and validate computational models to identify and stratify difficult-to-treat (D2T)
Rheumatoid Arthritis (RA) patients into clinically relevant phenotypes using real-world clinical data. STRATA-FIT received funding from the European Union through the Horizon Europe Programme and from
the Swiss State Secretariat for Education,
Research and Innovation.
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Related News Stories
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EULAR Launches RheumaFacts
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