About Don't Delay, Connect Today
In 2017, EULAR launched the Europe-wide campaign entitled ‘Don’t Delay, Connect Today’ with the goal to highlight rheumatic and musculoskeletal diseases (RMDs) as major diseases and a public health concern of pandemic proportions, and that early diagnosis and timely access to treatment can prevent further damage and burden on the individual and society.
The campaign targets the public, physicians, health professionals, occupational health therapists, physiotherapists, psychologists and policy-makers.
Why it matters?
They say life is short – so give it your best shot. For many millions of people in Europe the opportunity to design a good life is however severely limited by a chronic disease.
There are over 200 rheumatic and musculoskeletal diseases, RMDs. All of them can have debilitating effects on the individual, their life and career prospects, as well as national health care systems.
Approximately 100 million people in Europe are currently diagnosed with an RMD, there are however at least 100 million more who are living without a diagnosis.
EULAR started the campaign, Don’t Delay, Connect Today in 2017 with the purpose of raising awareness around the importance of early diagnosis and access to care – for all.
Don't Delay, Connect Today Life stories
||11-year-old Aran talks about his life living with a rheumatic and musculoskeletal disease
Meet Simon Stones who was diagnosed with Juvenile Idiopathic Arthritis, JIA, at the age of three. Today, Simon is undertaking advanced studies at university to obtain a PhD, and speaks about his ability to take action to bring his life onto this track thanks to early diagnosis.
Simon believes in the importance of a collaborative approach between doctors, people including young people and their parents to enable successful outcomes for all.
Kate Betteridge was diagnosed with Rheumatoid Arthritis, RA, at age 13. Her family doctor successfully identified symptoms and within eight weeks an accurate diagnosis was made.
Early diagnosis enabled Kate to go on to fulfil her dream of becoming a journalist and to integrate the management of RA into her life, rather than letting RA dominate her life and passions
Watch the "Don't Delay, Connect Today" full video playlist
EULAR PARE Member Organisations' participation
Member organisations of EULAR PARE have taken part in the Don't Delay, Connect Today campaign with a series of activities.
Click the country and scroll down to learn more.
Hand in Hand - together against rheumatism: Don't Delay, Connect Today in Belgium
The EULAR Campaign was officially launched at the Belgian Federal Parliament in February 2018 in Brussels. Attended by members of parliament and the media, the launch included an exhibition with real-life plaster hand and foot prints showed the importance of early diagnosis versus late diagnosis. The campaign will continue with the exhibition moving to different parts of Belgium every two to three weeks and finish with an event at the Brussels airport on 12 October 2018.
Run to Connect!
Join and support Claudine Goyens' Run to Connect project!
On the occassion of the Ostend Night run 22nd of September 2018, more than 70 brave people run & support the Run To Connect project. This great initiative promotes the EULAR campaign ''Don't Delay, Connect Today'', raising awareness about rheumatic diseases and to emphasize the importance of early diagnosis and access to proper care. So YES let’s do this!
The invitation is open to everyone --> run to connect invitation
You can give your support in different ways:
- Either by running during the Ostend Night Run: In a T-shirt of the “Don’t Delay, Connect Today” campaign. Before the run, a picture will be taken from the enthusiastic team to send throughout the world. It will be a great way to enhance visibility of the campaign. After the picture each can run at its own pace and distance.
- Or as an encourager along the trail:Encouragement would be great and also pretty necessary. Also not runners are more than welcome to be on the picture with the runners. The more, the better.
EULAR hosts campaigns to help achieve its goal in the area of Advocacy: to increase participation in work by people with RMDs by the year 2023.
For more information, contact firstname.lastname@example.org
EULAR PARE sessions at the EULAR European Congress of Rheumatology
A series of scientific programme sessions were held at the EULAR European Congress of Rheumatology around the Campaign Don't delay, Connect Today in order to provide further context to participants.
Join the conversation on social media #dontdelay