About Don't Delay, Connect Today
In 2017, EULAR launched the Europe-wide campaign entitled ‘Don’t Delay, Connect Today’ with the goal to highlight rheumatic and musculoskeletal diseases (RMDs) as major diseases and a public health concern of pandemic proportions, and that early diagnosis and timely access to treatment can prevent further damage and burden on the individual and society.
The campaign targets the public, physicians, health professionals, occupational health therapists, physiotherapists, psychologists and policy-makers.
Why it matters?
They say life is short – so give it your best shot. For many millions of people in Europe the opportunity to design a good life is however severely limited by a chronic disease.
There are over 200 rheumatic and musculoskeletal diseases, RMDs. All of them can have debilitating effects on the individual, their life and career prospects, as well as national health care systems.
Approximately 100 million people in Europe are currently diagnosed with an RMD, there are however at least 100 million more who are living without a diagnosis.
EULAR started the campaign, Don’t Delay, Connect Today in 2017 with the purpose of raising awareness around the importance of early diagnosis and access to care – for all.
Don't Delay, Connect Today Life stories
||11-year-old Aran talks about his life living with a rheumatic and musculoskeletal disease
Meet Simon Stones who was diagnosed with Juvenile Idiopathic Arthritis, JIA, at the age of three. Today, Simon is undertaking advanced studies at university to obtain a PhD, and speaks about his ability to take action to bring his life onto this track thanks to early diagnosis.
Simon believes in the importance of a collaborative approach between doctors, people including young people and their parents to enable successful outcomes for all.
Kate Betteridge was diagnosed with Rheumatoid Arthritis, RA, at age 13. Her family doctor successfully identified symptoms and within eight weeks an accurate diagnosis was made.
Early diagnosis enabled Kate to go on to fulfil her dream of becoming a journalist and to integrate the management of RA into her life, rather than letting RA dominate her life and passions
EULAR PARE Member Organisations' participation
Member organisations of EULAR PARE have taken part in the Don't Delay, Connect Today campaign with a series of activities.
Click the country and scroll down to learn more.
Read the press release here!
The ‘Don’t Delay, Connect Today’ campaign has been successfully implemented in Romania with a series of activities. Some of them took place on 19 April and others are ongoing until the end of 2018, all organised by the Romanian League against Rheumatism (LRR), the Romanian society for Rheumatology and the Romanian Association of Medical Partners for Rheumatology.
For the launch event on 19 April, a conference was organised in the Central University library of Bucharest on RMDs. It was attended by EULAR executives, authorities, health professionals and patients, who all came together to discuss the topic of early diagnosis and the impact on society, as well as the lives of people living with RMDs. Further, a series of awareness events in two shopping centers in Bucharest (AFI Cotroceni – April, 19th and Mall Promenada – April 20th) took place where people had the opportunity to find out more about RMDs by coming to the clock-shaped stand and asking questions or taking leaflets. A video will also be posted on the LRR’s website, You Tube and social media. Furthermore, a section in the website www.rheumatism.ro will be developed for one year under the topic of the campaign together with a dedicated Facebook page, aiming to inform and encourage people with RMDs and the general public about RMDs.
The aims of the campaign are to increase awareness of the symptoms of RMDs so that people immediately go to their GP or rheumatologist for a consultation, diagnosis and treatment. All in order to break down the barriers that currently stand in the way of early diagnosis.
EULAR hosts campaigns to help achieve its goal in the area of Advocacy: to increase participation in work by people with RMDs by the year 2023.
For more information, contact firstname.lastname@example.org
EULAR PARE sessions at the EULAR European Congress of Rheumatology
A series of scientific programme sessions were held at the EULAR European Congress of Rheumatology around the Campaign Don't delay, Connect Today in order to provide further context to participants.
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