EULAR Impact of RMDs Survey 

The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.  

The EULAR Impact of RMDs Survey will be available in all relevant languages of the EULAR member states and contains questions on diagnosis and disease history, access to care and its quality (medical and non-pharmacological treatments), disease burden, demographical status, and socioeconomic situation. All information will be de-identified to protect patient privacy and comply with relevant data privacy regulations.  

By collecting and analysing data from a large number of patients with RMDs on a recurring basis, this project will serve as a tool for monitoring disease trends and treatment patterns over time, which can help guide clinical practice, policy decisions and advocacy activities. 

The EULAR Impact of RMDs Survey is in its last phases of development and will be published on this page soon.  

For more information, please contact: 

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The EULAR Impact of RMDs Survey – Steering Group 

Prof. Dr. med. Anja Strangfeld, Germany 

Epidemiologist; German Rheumatism Research Centre and Charité University Medicine, Berlin, Germany 

Dr. Anna Molto, France

Rheumatologist & Epidemiologist, Chair of the EULAR Public Health and Epidemiology Research Sub-Committee; Hôpital Cochin (Hôpitaux Universitaires Paris Centre), Paris, France

Prof. Angela Zink, Germany 

Epidemiologist; German Rheumatism Research Centre, Berlin, Germany 

Prof. Pedro Machado, United Kingdom 

Rheumatologist & Epidemiologist; University College London (UCL), London, UK 

Dr.Elsa Mateus, Portugal

Patient Representative & Vice-President PARE; Portuguese League Against Rheumatic Diseases (LPCDR), Lisbon, Portugal 


The EULAR Impact of RMDs Survey – Operational Group   

Dr. Johanna Callhoff, Germany 

Statistician, German Rheumatism Research Centre and Charité University Medicine, Berlin, Germany 

EULAR Research team, Switzerland

Dr. Coralie Signorell, Research Manager

Dr. Konstantinos Billis, Research Data Architect

 Anastasiia Miendrova, Project Coordinator

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