PARE Interviews

New Beginnings, Transformation and Fresh Perspectives: Insights from the New Leadership of the EULAR PARE Committee

Francisco Javier Carreira Roca, member of the Editorial Board, interviews Simon Stones to get insights into his plans and vision for the coming two years of his term of office.

Fran: Simon, what are your plans and priorities for the next two years?

Simon: It is my privilege to step into the role of Chair of the EULAR PARE Committee —especially in a year that marks a decade since attending my first EULAR Congress. From being a founding member of Young PARE in 2014 to now leading this wonderful community, my journey has been one of learning, collaboration, and advocacy. 

Over the coming years, I aim to:

• Champion collaborative and inclusive research.
• Strengthen our evidence base and ensure it reflects the lived experiences of people with rheumatic and musculoskeletal diseases (RMDs).
• Advocate more strongly for underserved communities, including young people and LGBTQIA+ individuals.
• Expand collaboration—within rheumatology and beyond, across Europe and globally.

Fran: How did you prepare for this task?

Simon: Preparation has been an ongoing process — through active involvement, collaboration, and listening. I’ve learned from exceptional peers and mentors (in particular Peter Boyd, Elsa Mateus, Souzi Makri, Birte Glüsing, Betka Göhmann, and Anouk Hiltbrand), gained experience across committees, and embraced the importance of alignment on strategy and priorities. A clear vision, shared values, and open dialogue are essential. I’m ready to lead — but also to listen and learn.

Fran: How do you see the position of the patient community within EULAR? Is there room for improvement?

Simon: EULAR is a leading example of meaningful patient involvement. People with RMDs are integrated as equal partners across the organisation — from Task Forces to the Board. But progress must never stand still. There is always room to grow: increasing visibility, challenging assumptions, and creating even more opportunities for involvement. It’s about constantly asking: How can we do better?

Fran: What do you need from the EULAR PARE organisations and volunteers to do your job well?

Simon: Communication is key. We are stronger together. I encourage all EULAR PARE organisations to share your ideas, achievements, and even your frustrations. Let’s create spaces to listen, reflect, and innovate — because every voice adds value, and our diversity is our strength.

Fran: Do you believe there are enough possibilities in EULAR for volunteers to make a change?

Simon: Absolutely. EULAR is one of the most respected institutions in rheumatology globally, and its strength lies in its people. Every volunteer — regardless of background — can make an impact. If you’re passionate and committed, there is a place for you to lead change

Fran: Thank you Simon, for sharing these valuable insights. Good luck!